Cystic fibrosis model of care
The cystic fibrosis model of care (PDF, 548KB)
The model of care proposes the establishment of a statewide cystic fibrosis (CF) service. It was developed in consultation with clinicians, key stakeholder groups, consumers and carers. It takes a holistic consumer centred approach focusing on:
- improved transition from paediatric to adult services
- expanded community-based services provided by a skilled multi-disciplinary team
- increased consumer participation
A small working group is now working on the implementation of the model. They will focus on the following recommendations from the model of care, aiming to:
- develop referral pathways with an emphasis on access to multidisciplinary, community-based care, where possible supported by telemetry
- develop a road map for transition across developmental age groups with a particular focus on the transition from adolescence to adulthood
- develop evidence based guidelines and protocols
- develop workforce strategies to provide integration, reorientation and capacity building to improve consumer access to primary care and community-based services
The implementation working group consists of clinicians, Area Health Service planners, primary care representatives, community-based organisations, consumers and carers.
Members are:
Name |
Area |
Professor Stephen Stick (chair) |
Clinical Lead, Head of Department Respiratory Medicine, Princess Margaret Hospital for Children (PMH) |
Liz Balding |
Clinical Nurse Specialist, Paediatrics, PMH |
Nigel Barker |
CEO, Cystic Fibrosis WA |
Lewis Bint |
Chief Pharmacist, PMH |
Scott Lisle |
Area Health Planner, South Metropolitan Area Health Service |
Mitch Messer |
Consumer representative, President of CF International |
Bronwyn Middleton |
Coordinator Physiotherapy, Ambulatory Care, North Metropolitan Area Health Service (NMAHS) |
Sue Morey |
Clinical Nurse Specialist, Sir Charles Gairdner Hospital (SCGH) |
Leah Queit |
Dietitian, PMH |
Dr Gerard Ryan |
Respiratory Physician, SCGH |
Evyn Webster |
Social Worker, PMH |
| Judy Wenban | Area Health Planner, NMAHS |
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